FAQ

Frequently Asked Questions and Answers about the Rare Disease Center at Seoul National University Hospital

Frequently Asked Questions

Thanks for your interest in requesting an appointment with SNUH. Whether you are ready to request an appointment or have questions for our expert team, we are standing by to help.
Use our Online registration form, Email and social network accounts.
Our International Healthcare coordinator will contact you as soon as possible.
https://www.snuh.org/global/en/patients/appointmentMain.do

* How can i get to Seoul National University Hospital? Where is the International Healthcare Center?
– Go to our Homepage (http://www.snuh.org/global/en/main.do)
-> Location & Directions -> Location go Get Here.

There are instructions on how to get to the hospital by subway, car, airport limousine or taxi.

The International Healthcare Center is located inside the Seoul National University Hospital Campus on the Main Building (本官 “Bon Kwan”) 2nd floor.

We provide interpretation in English, Spanish, Mongolian, Russian, Chinese.
Most of specialists in our Hospital can speak English fluently.

* Note: If you have the Korean National Health Insurance you will receive the same service as Korean patients, therefore interpreters/support services cannot be provided.

You need to come to our office with your ID (ARC or Passport) and fill out a request form. If you need a CD with your radiological images, please tell us when you are requesting your medical records.

The medical certificate/opinion can only be written by a doctor, therefore if you need a medical certificate in English or in Korean you should request the doctor during the consultation. Otherwise, you have to make a new appointment to request one and will be additionally charged for the consultation.

If a third party is coming on your behalf to make a copy of the medical records or CD with radiological images, he/she has to bring the following documents (there can be limitations for medical records from departments such as neuropsychiatry, gynecology, urology etc. if the patient is not present):

– Authorization for disclosure and copy of medical records (You can download it at the Issuance Service page)
– Copy of the patient’s passport or Identification
– Copy of the passport or identification of the person that is coming on your behalf. (There can be additional charges depending on the type of document)

It’s a disease in which a reasonable diagnosis cannot be made at the current state of medicine, despite diagnostic efforts such as long-term scrutiny and consultation by experienced medical professionals.

Genetic counseling is a series of processes of comprehensively interpreting the patient’s medical history, their family’s medical history, and genetic results concerning genetic diseases, provide specific information on how such diseases are inherited, tested, managed, and prevented, and offer consultation and other forms of assistance so that patients and their families can better adjust to the risks of the disease itself and/or potential developments.

The Seoul National University Hospital Rare Disease Center is the central support center for rare diseases designated by the Ministry of Health and Welfare’s Korea Center for Disease Control and Prevention, and has established 11 rare disease regional base centers and a regional rare disease treatment network to improve medical access for people with rare diseases living in non-metropolitan areas. After receiving medical treatment at the central support center, patients can be transferred to the regional base centers. In addition, rare disease regional hub centers collaborate with the Korea Centers for Disease Control and Prevention, central support centers, city, county, and district level health centers, as well as community healthcare organizations to carry out local rare disease management projects.
* For more information on the Base Center, please visit Main Project >Central Support Center.

The Central Support Center (Seoul National University Hospital) has been designated as the Central Support Center for Rare Diseases since 2019, and is in charge of supporting the operation of each regional center. It operates the regional center council by region, develops and distributes educational material to foster medical professionals, supports the establishment of a national rare disease research plan, preventive measures for the designation of rare disease specialized institutions, analysis of rare disease registration statistics, and the training of specialized workforce for institutions.
-> Link to Main Project (Central Support Center)

How do I get to Seoul National University Hospital?

Thanks for your interest in requesting an appointment with SNUH. Whether you are ready to request an appointment or have questions for our expert team, we are standing by to help.
Use our Online registration form, Email and social network accounts.
Our International Healthcare coordinator will contact you as soon as possible.
https://www.snuh.org/global/en/patients/appointmentMain.do

There are instructions on how to get to the hospital by subway, car, airport limousine or taxi.

The International Healthcare Center is located inside the Seoul National University Hospital Campus on the Main Building (本官 “Bon Kwan”) 2nd floor.

Does the International Healthcare Center provide interpreters?

We provide interpretation in English, Spanish, Mongolian, Russian, Chinese.
Most of specialists in our Hospital can speak English fluently.

  •  Note: If you have the Korean National Health Insurance you will receive the same service as Korean patients, therefore interpreters/support services cannot be provided.
How can I get a copy of my hospital records (medical records and/or radiological images) and can I get the records in English? If I am unavailable can someone else get a copy of my medical records?

You need to come to our office with your ID (ARC or Passport) and fill out a request form. If you need a CD with your radiological images, please tell us when you are requesting your medical records.

The medical certificate/opinion can only be written by a doctor, therefore if you need a medical certificate in English or in Korean you should request the doctor during the consultation. Otherwise, you have to make a new appointment to request one and will be additionally charged for the consultation.

If a third party is coming on your behalf to make a copy of the medical records or CD with radiological images, he/she has to bring the following documents (there can be limitations for medical records from departments such as neuropsychiatry, gynecology, urology etc. if the patient is not present):

  • Authorization for disclosure and copy of medical records (You can download it at the Issuance Service page)
  • Copy of the patient’s passport or Identification
  • Copy of the passport or identification of the person that is coming on your behalf. (There can be additional charges depending on the type of document)
What is an undiagnosed rare disease?

It’s a disease in which a reasonable diagnosis cannot be made at the current state of medicine, despite diagnostic efforts such as long-term scrutiny and consultation by experienced medical professionals.

What is genetic counseling?

Genetic counseling is a series of processes of comprehensively interpreting the patient’s medical history, their family’s medical history, and genetic results concerning genetic diseases, provide specific information on how such diseases are inherited, tested, managed, and prevented, and offer consultation and other forms of assistance so that patients and their families can better adjust to the risks of the disease itself and/or potential developments.

Where can I find rare disease care outside of Seoul?

The Seoul National University Hospital Rare Disease Center is the central support center for rare diseases designated by the Ministry of Health and Welfare’s Korea Center for Disease Control and Prevention, and has established 11 rare disease regional base centers and a regional rare disease treatment network to improve medical access for people with rare diseases living in non-metropolitan areas. After receiving medical treatment at the central support center, patients can be transferred to the regional base centers. In addition, rare disease regional hub centers collaborate with the Korea Centers for Disease Control and Prevention, central support centers, city, county, and district level health centers, as well as community healthcare organizations to carry out local rare disease management projects.

What is the role of the Central Support Center?

The Central Support Center (Seoul National University Hospital) has been designated as the Central Support Center for Rare Diseases since 2019, and is in charge of supporting the operation of each regional center. It operates the regional center council by region, develops and distributes educational material to foster medical professionals, supports the establishment of a national rare disease research plan, preventive measures for the designation of rare disease specialized institutions, analysis of rare disease registration statistics, and the training of specialized workforce for institutions.
-> Link to Main Project (Central Support Center)

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