Related Websites
Links to the websites of partner institutions, medical networks, etc.
Websites providing information about rare diseases in Korea and overseas
◈ HOSPITAL
Seoul National University Hospital
• Seoul National University Hospital (SNUH) is a central national hospital that leads the advancement of medicine in South Korea.
• Through its network of hospitals, including SNU Bundang Hospital, SMG-SNU Boramae Medical Center, SNUH Healthcare System Gangnam Center, and Sheikh Khalifa Specialty Hospital (SKSH) located in the United Arab Emirates (UAE), SNUH is at the forefront of not only improving healthcare in our country but also advancing global medicine.
Visit Website : http://www.snuh.org/global/en/main.do
Visit International Healthcare Center
>> View more related institution of SNUH
– SNU BUNDANG HOSPITAL
– SMG-SNU Boramae Medical Center
– SNUH Healthcare System Gangnam Center
– Sheikh Khalifa Specialty Hospital (SKSH)
◈ Government
Ministry of Health and Welfare
• The central administrative agency responsible for overseeing public health and welfare policies of the nation, including matters related to medical insurance, national pension, and family welfare.
Visit Website: https://www.mohw.go.kr/eng/index.jsp
Korea Disease Control and Preventation Agency
• KDCA is an organization under the Ministry of Health and Welfare established for the improvement of public health.
• Provides information on infectious diseases, health, policy, research and development, as well as publications and statistical data.
Visit Website : https://www.kdca.go.kr/index.es?sid=a3
NORD (National Organization for Rare Disorders)
• NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
Visit Website : https://rarediseases.org/
>> 40 NORD Rare Disease Center of Excellence
• NORD Rare Disease Centers of Excellence Program is the first national network of U.S. hospitals and medical institutions dedicated to diagnosing, treating and researching all rare diseases.
Orphanet
• The portal for rare diseases and orphan drugs
Visit Website : https://www.orpha.net/consor/cgi-bin/index.php
OMIM (Online Mendelian Inheritance in Man)
• Online mendelian inheritance in man (omim) is a comprehensive, authoritative compendium of human genes and genetic phenotypes that is freely available and updated daily.
Visit Website : https://omim.org
GARD (Genetic and Rare Diseases Information Center)
• GARD is a information about genetic and rare diseases. program of the National Institutes of Health (NIH) that provides free access to reliable, easy to understand
Visit Website : https://rarediseases.info.nih.gov/diseases
UDNI (Undiagnosed Disease Network International)
• UDNI involves centers with internationally recognized expertise, and its scientific resources and know-how
aim to fill the knowledge gaps that impede diagnosis.
All information for physicians and patients will be available at the UDNI website.
Keywords : Diagnosis, Global health, Omics, Ontology, Rare diseases, Undiagnosed
Visit Website : https://www.udninternational.org/
◈ HOSPITAL
Seoul National University Hospital
• Seoul National University Hospital (SNUH) is a central national hospital that leads the advancement of medicine in South Korea.
• Through its network of hospitals, including SNU Bundang Hospital, SMG-SNU Boramae Medical Center, SNUH Healthcare System Gangnam Center, and Sheikh Khalifa Specialty Hospital (SKSH) located in the United Arab Emirates (UAE), SNUH is at the forefront of not only improving healthcare in our country but also advancing global medicine.
Visit Website : http://www.snuh.org/global/en/main.do
Visit International Healthcare Center
>> View more related institution of SNUH
– SNU BUNDANG HOSPITAL
– SMG-SNU Boramae Medical Center
– SNUH Healthcare System Gangnam Center
– Sheikh Khalifa Specialty Hospital (SKSH)
◈ Government
Ministry of Health and Welfare
• The central administrative agency responsible for overseeing public health and welfare policies of the nation, including matters related to medical insurance, national pension, and family welfare.
Visit Website: https://www.mohw.go.kr/eng/index.jsp
Korea Disease Control and Preventation Agency
• KDCA is an organization under the Ministry of Health and Welfare established for the improvement of public health.
• Provides information on infectious diseases, health, policy, research and development, as well as publications and statistical data.
Visit Website : https://www.kdca.go.kr/index.es?sid=a3
NORD (National Organization for Rare Disorders)
• NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
Visit Website : https://rarediseases.org/
>> 40 NORD Rare Disease Center of Excellence
• NORD Rare Disease Centers of Excellence Program is the first national network of U.S. hospitals and medical institutions dedicated to diagnosing, treating and researching all rare diseases.
Orphanet
• The portal for rare diseases and orphan drugs
Visit Website : https://www.orpha.net/consor/cgi-bin/index.php
OMIM (Online Mendelian Inheritance in Man)
• Online mendelian inheritance in man (omim) is a comprehensive, authoritative compendium of human genes and genetic phenotypes that is freely available and updated daily.
Visit Website : https://omim.org
GARD (Genetic and Rare Diseases Information Center)
• GARD is a information about genetic and rare diseases. program of the National Institutes of Health (NIH) that provides free access to reliable, easy to understand
Visit Website : https://rarediseases.info.nih.gov/diseases